Jackie Leach Scully Speaks on Precision Medicine, Ethics, Politics, and Culture on March 9

On March 9th, the CSSD project Precision Medicine: Ethics, Politics and Culture will host Jackie Leach Scully for a lecture at Columbia.  Leach Scully is Professor of Social Ethics and Bioethics, and Executive Director, Policy, Ethics and Life Sciences Research Centre, Newcastle University, UK.

Professor Leach Scully asks how the enormous recent advances in genomic knowledge and capabilities might affect the public's understanding of embodiment that is disabled. How might precision medicine influence thinking about and attitudes towards disability, and disabled people, in the future?

Read more about the event here.

CONFERENCE: "China and Africa at a Crossroads: Revisiting the Legacy of Bandung Humanisms"

The CSSD working group Bandung Humanisms hosted the conference "China and Africa at a Crossroads: Revisiting the Legacy of Bandung Humanisms."  The event opened with Project Director Stathis Gourgouris placing humanism at the center of the "Bandung spirit” associated with non-alignment and anti-colonial thinkers like Frantz Fanon and W.E.B. du Bois.

The first panel called attention to mid-20th century China-Africa interactions that fell from view, at least in US academic discourse, under the rubble of the Berlin Wall. Mahmood Mamdani moderated this panel, with Howard French served as discussant for Jamie Monson (“Decolonizing Translation: Gender, Intermediaries and Interpretation in China-Africa Engagement”) and Duncan Yoon ("“Africa, China and Cold War Literature”).

See photos here.

Jamie Monson emphasized the importance of gender in the interlingual encounters of the China-Africa entanglement. Her presentation illuminated the normally obscure role of Chinese and African women internationalists, whose knowledge production has not only been undervalued but was also discarded as a consequence of the global neoliberal turn. Glimpses of her archive—including as-yet unpublished photographs and interviews with African and Chinese women who were diplomats, translators, and teachers—were audibly appreciated among the audience.

Duncan Yoon performed a close reading of Ngūgī wa Thiong’s Petals of Blood as a "novel of Cold War entanglement.” In Yoon's analysis, the version of Maoism that Ngūgī deployed should be recognized foremost as a symbolic endorsement of the Kenyan writer's own project. For Yoon, Ngūgī rejects any notion of art for art’s sake by adopting an aesthetically "Chinese path” that adheres to his well-known call to "decolonize the mind.”

The second half of the workshop centered on how concepts of race and place shape the encounter between Africa and China. Lydia H. Liu acted as moderator and Stephanie Rupp as discussant for a panel with Rebecca Karl (“China and Africa: A Longer View from the Turn of the Twentieth Century”), Yan Hairong ("Chinese, Africans, 'Laziness' and Discourse of Racialization”) and Barry Sautman (“Differences at the Margin: Understanding the Chinese Presence in Africa”). The latter two papers were co-authored by both Yan Hairong and Barry Sautman.

Through texts spanning the 19th-20th centuries, Rebecca Karl explored what is effectively the reverse of Ngūgī’s gaze towards Maoism: the process whereby "Africa” came into focus in Chinese thought. Karl’s analysis traced China’s evolving concepts of the Dark Continent over the long durée of globalizing capital to show a picture of “Africa” inflected, though not determined, by the geographic and racial signifiers set into motion by global European empires.

Like Karl, Yan Hairong raised the question of the influence exerted by European colonialism, particularly the biological-essentialist notion of race. To do this, her talk offered a discourse analysis of the prevalent stereotype of locals as “lazy” among Chinese émigrés in sub-Saharan Africa. Yan Hairong argued that Chinese concepts of "laziness” differ across linguistic and historic situations with the result that, in some instances, they should not be understood as identical to stereotypes derived from European, colonial racial discourse.

The final presentation of the day by Barry Sautman widened the gaze to the bi-continental theme in itself, casting a skeptical gaze on Western media representations of China in Africa. Sautman argued that these international portrayals exaggerate China’s role compared to Africa’s other "traditional investors” and cast China’s African ventures in an unfavorable light.

Among its motives, the call for scholarly reorientation towards south-south encounters invokes the asymmetries shared by direct investment in Africa and 20th-21st century international co-operation, and the workshop raised many compelling questions well beyond the scope of a single workshop. The second panel was particularly animated by underlying epistemological questions about the unevenness of China-Africa encounters, and unsurprisingly, the presentations provoked a heated discussion. At minimum, this welcome contention over either contemporary internationalism or the intellectual, interlingual questions prompted by mid-20th century Afro-Asianism, further corrects what Yoon named as the US-Soviet bias in Cold War cultural studies.

It’s promising that between them, the two panels underlined the importance of revisiting Bandung by highlighting the analytical and ethical problems in the encounters of sub-Saharan Africa with China. Firstly, by addressing the compelling need to rethink comparative literature in terms of trans-regional, intercontinental intellectual histories beyond Europe and North America, Yoon realigned a classic exemple of postcolonial writing, and Karl plotted Chinese thought intersecting in a circular manner not unlike maritime flows of commodities with European colonialism. Likewise, Monson’s focus on the concerted effort during the last century to translate directly between Chinese and Kiswahili lent a salutary attention to discourses beyond our Anglophone medium for scholarship, an effort that was complimented by the research Karl and Yan Hairong presented.

See photos from the conference here.

Jacqueline L. Chin Discusses "Precision Medicine, Privacy, and Family Relations" on February 9

On February 9, the CSSD working group Precision Medicine: Ethics, Politics, and Culture will host a discussion by Jacqueline L. Chin, Associate Professor, Centre for Biomedical Ethics, Yong Loo Lin School of Medicine, National University of Singapore, on the topic of "Precision Medicine, Privacy, and Family Relations."

Chin posits that a better understanding of genetic information not only enables the linking of genetic identity to conceptions of disease, treatment and prevention, but offers the possibility of using information mining techniques (such as comparison with bodies of data about environment and lifestyle, and stratification of information) for refining disease classifications, refining risk assessment by determining individual risk, and targeting treatment and preventive behavior. Much of the attraction of precision medicine, in Chin's view, is driven by glimpses into the complex base of human life, the desire to understand current health statuses and future health implications, and the concentration of power in big data. This evolving metaphor is bound up with other important ones, including powerful stories of people wishing to have or not have knowledge about future health, depending on how such choices and their ramifications are framed in their context. Exploring the ethical debate on ‘genetic privacy’, this lecture offered some examples of how social debates about the goals of genomics are helping to structure individual and family decisions.  Chin asks how precision medicine initiatives in different parts of the world can foster citizen participation in defining the goals of genomic medicine.

David Scott Wins Distinguished Editor Prize from the Council of Learned Journals

David Scott, Professor of Anthropology at the Institute for Research in African American Studies, Columbia University, and former co-director of CSSD's Digital Black Atlantic Project, received the Distinguished Editor prize from the Council of Editors of Learned Journals for his work on Small Axe: A Caribbean Journal of Criticism.

Small Axe edited and published under Scott’s vision has become one of most relevant intellectual and creative publications for our current political, social and cultural climate. Small Axe continues to reflect the ‘problem space’ of the contemporary global moment," said Roshini Kempadoo, lecturer at University of Westminster.

Read more about David Scott's prize here.

Anupama Rao Publishes New York Times Opinion Piece on Indian Supreme Court Ruling

Anupama Rao, Associate Professor of History, Barnard College, and director of the recently completed CSSD project on Gender and the Global Slum, published an opinion piece in the New York Times on an Indian Supreme Court ruling that bans political appeals to identity.

"In India today, we are seeing the overturning of an order predicated on the protection of social minorities in favor of majority rights," wrote Rao. "Given current politics, will Hindu majoritarian claims be allowed, while minorities are banned from making claims to discriminated identity, or social suffering?" she wrote.

Read the full piece here.

Refugees and Gender Violence: Vulnerability and Resistance

On Thursday, February 9, CSSD presents a panel discussion on “Refugees and Gender Violence: Vulnerability and Resistance” from 4:10 to 6 p.m. in 523 Butler Library. This is the third panel discussion in a two-year series called Reframing Gendered Violence.Reframing Gendered Violence is part of the Women Creating Change initiative supported by the Dean of the Humanities and the Columbia Global Centers. The project is also linked to the project on Religion and the Global Reframing of Gender Violence, which is supported by the Henry Luce Foundation.

Wendy Vogt, Professor of Anthropology, Indiana University-Purdue University Indianapolis, will present on  “Rape Trees, State Security and the Politics of Sexual Violence along Migrant Routes in Mexico” and Chloe Howe Haralambous, Graduate Student, English & Comparative Literature, Columbia University will discuss her work with Syrian refugees on Lesbos and on “Suppliants and Deviants: Gendering the Refugee/Migrant Debate on the EU Border.” Isin Onol, Curator in Vienna and Istanbul, talks about an exhibition she curated with refugee artists called “When Home Won’t Let You Stay: A Collective Deliberation on Taking Refuge” and Diana Taylor, Director, Hemispheric Institute of Performance and Politics, NYU, will speak on her work with migrants in Mexico and Central America in, “Migrants and a New Mothers’ Movement.”

Reframing Gendered Violence is an international collaboration between scholars, artists and activists that aims to recast the way violence against women (VAW) and gender-based violence (GBV) are currently discussed in a wide range of fields, both academic and policy-oriented, including human rights, public health, journalism, law, feminist studies, literature, sociology, religious studies, anthropology, and history.

The fourth and final event in the series, “Refugees and Gender Violence: Media and the Arts,” takes place Thursday, March 30th from 4:10 to 6 p.m. in 523 Butler Library.

See the Facebook event page for this event here.

Lila Abu-Lughod Reviews Katherine Zoepf's "Excellent Daughters: The Secret Lives of Young Women Who Are Transforming the Arab World"

Lila Abu-Lughod, Joseph L. Buttenwieser Professor of Social Science, Columbia University and director of CSSD's working group on Religion and the Global Framing of Gender Violence, reviewed Katherine Zoepf's Excellent Daughters: The Secret Lives of Young Women Who Are Transforming the Arab World  in the latest issue of the Women's Review of Books.

In the review titled "'Muslimwomen,' Journalists and Scholars," Abu-Lughod credits Zoepf with concrete observations in her journalistic stories, saying "She shows not a trace of the self-promotion, polemic, or prejudice that colors so much popular writing on this subject," but finds other problems with the writing.

Zoepf makes no reference to the devastating effect that U.S. policies have had on people living in the Arab world, Abu-Lughod contends, but instead focuses on sensationalizing, cliched subjects like virginity examinations, medieval history, and the hijab.

Abu-Lughod goes on to say that "Zoepf’s apparent loyalty to the standard operating procedures of her profession (of journalism) prevents her from considering the extraordinary feminist scholarship that exists now on the very topics she covers."

Read the full review here.

Ruha Benjamin on “Can the Subaltern Genome Code? Reimagining Innovation and Equity in the Era of Precision Medicine”

In November, Ruha Benjamin, Assistant Professor in the Department of African American Studies at Princeton University, visited CSSD’s Project on Precision Medicine: Ethics, Politics, and Culture to argue for a re-imagining of innovation and equity in the era of precision medicine. Her presentation, “Can the Subaltern Genome Code?” presented a number of competing struggles over the future of precision medicine, positioning the field in a contemporary landscape of racialized inequality and disparities in access to genetic information.

The stakes of precision medicine, Benjamin explained, involve thinking through the underlying reasons for scientific intervention in human genetics. She emphasized that it is crucial for stakeholders involved in the creation and imagination of precision medicine’s possibilities to also reimagine inequality as a concept with biological underpinnings.

Benjamin critiqued the life sciences’ claims to be able to arbitrate the reality of race—particularly genomic researchers' attempts to establish a biological basis for racial difference—and emphasized that questions remain about the racialized aspects of who has the power to translate and interpret genetic information. (Hence the question: Can the subaltern genome code?)

Benjamin also challenged the policies of some states, like the U.K. and Kuwait, that have adopted border-control and information-gathering policies based on the notion that social differences such as ethnicity and nationality can be verified with genetic groupings. This false diagnosis of identity brands national populations as biologically distinct, and thus naturalizes boundaries, instead of celebrating genetic sovereignty, Benjamin said.

Benjamin highlighted the importance of imagination as a tool to think through ethical challenges that arise with advances in genomic science. She cautioned the thinkers and creators of precision medicine to be vigilant about the potential for the creation of hierarchies based on genetic differences. Those who invest in biotechnology don’t limit themselves to the “realistic” when it comes to imagining the possibilities of precision medicine, she reminded the group, inviting those who are concerned about genomic science’s ethical stakes not to limit their imaginations for alternative possibilities, either.

In a working group session the followed, members continued to examine the question of inequities by applying questions of bio-constitutionalism to the realities of the Precision Medicine Initiative (PMI).

Responding to group members’ questions about informed consent and informed refusal, Benjamin introduced the idea of a consent framework known as “DNA on loan”—a means of navigating genomic rights among marginalized groups. Within this framework, Canadian researchers collecting genetic information from First Nations tribes cannot simply obtain one-time consent, but must return to the community and ask them to re-consent as research progresses.

Building on these concepts, the question of the “right not to know” was brought forward as an issue of informed consent. With increased knowledge of genetic predictors of illness coming forth as a result of initiatives such as PMI, group members argued, questions of consent apply not only to participation in studies, but also to the potential for knowledge of a genetic risk for an illness. With a growing effort to identify relationships between genes and manifestation of illness, what are the limits to informing the participant of potential statistically, but not clinically, significant genetic findings?

Benjamin pointed out that consent starts with incorporating the reality of the participant as a part of the process—that it is not simply a single moment of consent, but a process of building a relationship. By shifting the onus of responsibility to provide pertinent information from the participant to the clinician/researcher, Benjamin suggested, researchers can begin to enable the subaltern to genome code.

To achieve such an empowering person-to-person connection requires a restructuring of the foundation upon which clinicians are trained: not in cultural competency, but rather in cultural humility. Benjamin advocated for physicians to broaden their perspectives beyond what they need from the participant, and instead attend to what narratives and experiences the participant brings to the clinical encounter.

 

Contributed by Amar Mandavia & Fatemeh Adlparvar

Paige West and J.C. Salyer Discuss Dispossession and Capital Accumulation in the Context of Papua New Guinea

Paige West, Claire Tow Professor of Anthropology (Columbia), and J.C. Salyer, Staff Attorney for the Arab-American Family Support Center and Term Assistant Professor of Practice in Sociology (Barnard), were interviewed for a blog by the Center for Energy and Environmental Research in the Human Sciences at Rice University.  West and Salyer,  co-directors of CSSD's Pacific Climate Circuits working group, discussed how the controversy around Australia's forced internment of migrants and refugees in detention centers in PNG belies a deeply inequitable, neo-colonial relationship between the two sovereign nations. They also discussed how the different causes of migration (war, economy, climate change) are often blurred and how the detention centers in PNG should be viewed as an experimental venture that reveals how states like Australia intend to handle the increasing future flows of refugees.

West also discussed her latest book, Dispossession and the Environment: Rhetoric and Inequality in Papua New Guinea, which explores how rhetoric of Papua New Guinea's (PNG) alleged “savagery” operates as a mode of dispossession in domains like tourism, conservation and resource extraction.

West explained how Western corporations and governments repeatedly invoke rhetoric that casts PNG as a primitive place so specialists from industries centered on tourism, environmental conservation, and petrochemical development can dominate the discourse, "hollowing out" the country's sovereign agency and replacing it with their own interests. West referred to this dispossession as the "ideological work that capital requires for constant regeneration."

Listen to the full interview here.

Laura Ciolkowski Discusses Rape Culture and "Locker Room Talk" on WFUV Podcast "Issues Tank"

Laura Ciolkowski, Associate Director of the Center for the Study of Social Difference and Adjunct Associate Professor of English and Comparative Literature at Columbia University, was interviewed on the WFUV podcast "Issues Tank" on the subject of rape culture and "locker room talk."

Following the outcry over then-presidential hopeful Donald Trump's reference to past sexually predatory and misogynist comments as "locker room talk," the podcast episode featured interviews with male and female athletes on what conversations really happen in locker rooms and discussion with Ciolkowski about "gendered language" in general.

Ciolkowski said the current conversation about "locker room talk" needs to focus less on inherent gender differences between men and women in relation to language  -- she repudiates the popular model of "men are from Mars, women are from Venus" -- and more about social power dynamics.

"When we talk about gendered language we should be talking about status and power" rather than some sort of "hard-wired" male and female difference, said Ciolkowski.  Gendered language always expresses differences in status rather than simply biology or Nature, she said.

Such differences in status often work in the service of rape culture, which Ciolkowski defines as the trivializing and normalizing of sexual violence (“boys will be boys,” “locker room talk”) and the objectification and devaluation of women. Ciolkowski believes that the increased frequency of discussions about “locker room talk” in the news cycle and the popular media means "We are forced to see and think about in a much more nuanced way what work this language is doing" and are being given even more opportunities to "push back against it."

Hear the full podcast here.

DISCUSSION: Framing Religion and Gender Violence—Beyond the Muslim Question

“Why and when is religion invoked in global responses to gendered violence? What roles are attributed to religion? What categories of the religious become seen as credible in anti-violence work?""Who pays the price and who benefits from the ways that religion is used to frame global understandings of gender violence?” asked Lila Abu-Lughod, Joseph L. Buttenwieser Professor of Social Science, Columbia University and CSSD project director, as she opened a November panel on “Religion and the Global Framing of Gender Violence: Beyond the Muslim Question.”

The second in a series of events for the CSSD’s Reframing Gendered Violence project, the panel extended the discussions of an earlier talk in October, thanks to support from the Dean of the Humanities, the Columbia Global Centers, and the Henry Luce Foundation.

Introducing the two speakers, Abu-Lughod complimented their shared ability to bridge the divide between scholarship and activism.

Dina Siddiqi, Professor of Anthropology, BRAC University, presenting on “Child Marriage and the Feminist Imagination,” attested to the struggle feminists in the developing world face as they grapple with forces competing with any commitments to local contexts and concerns.

“How do progressive feminists in a place like Bangladesh—deeply transnational yet geopolitically marginal—negotiate the complexities of neoliberal donor and corporate agendas, developmentalist state imperatives, geopolitical securitization frames, and calls to global feminist unity?” said Siddiqi. “What kind of agency is possible when feminism itself has been governmentalized?” she challenged her listeners.

Nacira Guénif-Souilamas, Professor of Education Sciences, University of Paris 8 Vincennes-Saint-Denis, approached the question of religion and gender violence through the problem of foundational inequality in French and European polities.

“The skin color fiction, the sexual deviance of Arab youths, or the gendering of the ‘other’ religion, are objectifications of normative rules that limit the social possibilities of equal rights,” said Guénif-Souilamas. In such instances, social life is defined as a realm of equality because it is always already racially indexed,” she asserted as she presented on “Restrained Equality: A Sexualized and Gendered Color line.”

The event concluded with a lively Q & A that featured questions on topics ranging from the future of neoliberalism to laïcite and the banning of the veil in French schools to the framing of critical feminism.

Photos from this event are available here.

Video from the November 3rd event is available here and video from the October 13th event here.

 

Contributed by Liza McIntosh

Aditya Bharadwaj Discusses Cultivated Cures: Ethnographic Encounters with Contentious Stem Cell Regenerations in India

In October, the CSSD working group Precision Medicine: Ethics, Politics and Culture hosted Aditya Bharadwaj, Professor of Anthropology and Sociology of Development at the Graduate Institute, Geneva, who presented his work on “Cultivated Cures: Ethnographic Encounters with Contentious Stem Cell Regenerations in India.”

Bharadwaj’s research generated a provocative discussion on the diaspora of stem-cell research and its ecological detriments in India, leading the discussants to explore caveats of cure, disease and illness from the perspective of communities that reside in the fringes of Indian society.

Bharadwaj questioned his own position as a scholar-researcher who investigates and gives voice to the rural and largely invisible people of India. He also questioned the dogmas of Western models of scientific research and the ethical dilemmas that govern their approaches to the study of human suffering as experienced by marginalized groups.

Bharadwaj opened his talk by posing alternative conceptualizations of illness and health. Health, generally considered to be a normative or neutral state, was redefined as a dormant state without evident disease or illness. Health and disease co-exist within the body and a paradigm shift is required to understand the state of good health as not a mere absence of disease, but rather a dormancy of disease, according to Bharadwaj. In a nutshell, “health exists in the moments when disease sleeps and is cast aside when disease awakens.”

Bharadwaj emphasized that the prevalence of problems like underdevelopment, malnutrition, and disease in many developing countries, including India, are a direct result of pressures created by a corporatist intelligentsia and market-driven socio-ecological changes that degrade living environments. The global hegemony of Queen Victoria’s Britain was central to this process, neglecting the social justice concerns and ecological sanity of indigenous people, he claimed.

The group discussed the need to redefine and decontextualize “justice” while researching the indigenous diaspora. The guidelines of scientific and behavioral research into fringe cultures, including clinical trials, are defined by teaching professionals from elite institutions in developed countries, leading to incorrectly assumed prophylaxes and etiologies of illness, the group agreed.

The group discussed the possibility of creating a middle ground within an eco-politics strategy that might be more inclusive of indigenous cultures and benefit affected communities more directly. Due to India’s lack of evidence-based baseline and needs-assessment indicators, investment projections for stem cell research remain ambiguous.

The group also discussed how health care and social markets function differently from business markets. Bharadwaj explained that efforts to develop and incorporate indigenous methods of “cultivated cures” and treatment should be prioritized and valued, in order to balance the impact of more modern models of care that are standardized in the developed world.

In response, many in the group questioned the science behind this model. Coming from the tradition of Western science, some defended the need for peer-reviewed articles and government oversight. Without this structure, some cautioned, clinics in developing communities may be able to dabble in pseudoscience and peddle “cures” to desperate patients without power or choice.

Contributed by Srishti Sardana & Christopher Cadham

Laura Ciolkowski's Rape Culture Syllabus in Public Books

Laura Ciolkowski, Associate Director of the Center for the Study of Social Difference and Adjunct Associate Professor of English and Comparative Literature at Columbia University, published her Rape Culture Syllabus in the October 15th issue of Public Books.

Rape culture, the trivializing of sexual violence and the tendency to blame victims while exonerating or excusing assailants, also refers to the racial disparities in arrests and sentencing of accused rapists, according to the piece.  Published in the wake of the public furor that arose in connection to the sexually predatory and misogynist comments of then-presidential hopeful Donald Trump, the Rape Culture Syllabus has been circulating widely on social media and republished on a range of sites, including Melissa Harris-Perry's Anna Julia Cooper Center and Feminist Wire.

Photograph: Florida supporters of Donald Trump, 2016. By mollyesque / Instagram

"The syllabus was indeed one of our most viewed and shared articles of the past few months. It circulated widely on Facebook and Twitter, and generated lots of appreciative comments," said Liz Maynes-Aminzade, Digital Director at Public Books.

The thirteen-week syllabus covers subjects as far-reaching as the history of gender-based violence in the United States and the politics of rape, to toxic masculinity and racial and state violence.  "What would the conversation around sexual assault, police bias, and the legal system look like if investigators, police officers, and judges read deeply into the literature on sexuality, racial justice, violence, and power?" wrote Ciolkowski.

Read the full rape culture syllabus here.

 

Katherine Franke Writes about #BlackLivesMatter and the Question of Palestinian Genocide

Katherine Franke, CSSD Faculty Fellow and Professor of Law and Director, Center for the Study of Law and Culture, Columbia Law School, blogged on The Nakba Files about #BlackLivesMatter and the question of genocide in Palestine.

According to Franke, the Movement for Black Lives has criticized the U.S. government for providing military aid to Israel, saying "The U.S. justifies and advances the global war on terror via its alliance with Israel and is complicit in the genocide taking place against the Palestinian people.”

In response, critics accused authors of the statement and its supporters of antisemitism in connection to their use of the word "genocide" with respect to Israel.

Franke explained that the term “genocide” has particular relevance in this context: “Genocide can be applied to the destruction of a people or a national group as a viable group, and that can be both with their being driven from a land or the rendering of their language no longer legal, or just the destruction of their national identity.”

Read the full post here.

James Tabery Traces History of The Human Genome Project with CSSD's Precision Medicine Working Group

On September 15, the Precision Medicine: Ethics, Politics, and Culture working group kicked off its first semester with a talk by James Tabery, Professor of Philosophy and Medicine at the University of Utah.

Tabery’s talk on “Collins’ Cohort: The Path from The Human Genome Project to the Precision Medicine Initiative” provided historical perspective on the Precision Medicine Initiative (PMI) announced by President Obama in his 2015 State of the Union address, a plan to recruit a cohort of 1,000,000 or more American volunteers to provide biological, environmental, and health information over an extended period of time.

At the time, Tabery explained, the proposal made headlines because of its ambitious scope and exciting medical promise. The idea, however, was not a new one. As the Human Genome Project was wrapping up in 2003, the director of the National Human Genome Research Institute sought to set the NIH off on another bold genetic initiative—to create a large, longitudinal, national cohort that would allow for examining the genetic and environmental contributions to health and disease. The path from that initial idea in 2003 to the public announcement at the State of the Union address in 2015 was marked by technological advances, logistical challenges, ethical dilemmas, and political hurdles. That historical legacy also reveals a great deal about what we can expect (and not expect) from the Precision Medicine Initiative.

Tabery reviewed the history of successes and failures among previous initiatives such as the American Family Study, The American Genes-Environment Study, and the Genes, Environment, and Health Initiative. With the 2015 State of the Union address, he explained, the dream of Frances Collin, director of the NIH, was realized. The PMI would seek to enroll 1 million people in a cohort reflecting the diversity of the US population, with the goal of creating personalized clinical care based on genes, environment, and lifestyle. It would aim to provide personalized, clinical care for both rare and common disorders, as well as learning about what makes people healthy.

Some of the worries about PMI are unfounded, according to Tabery. Although many worry that the PMI is moving too fast, history tells us that it is the product of over a decade of thought. And although some also worry that the PMI will fail in its goal to recruit a million subjects, Tabery claims that Collins will deliver.

A more serious concern regards what it would mean for the PMI to succeed. Since the PMI is really concerned with genetic, there is a lot of talk about the environmental factors that cause disease but little attention to specifics. Since other countries are already doing these kinds of studies, some ask why the United States should replicate their work? And finally, Tabery wondered whether the sample collected will really be representative.

Tabery closed by reminding his audience that the PMI is a work-in-progress. Given that Columbia is one of the enrollment centers, this is an exciting time to be thinking about the questions raised and to witness, on the ground, how they are addressed.

 

Photo above is of members of the Precision Medicine: Ethics, Politics, and Culture working group.

CSSD Co-sponsors Dissent Issue Launch Concerning the Feminist Movement's Response to Trump Presidency

Dissent magazine’s editors and contributors are gathering Tuesday, November 22, 6:30 p.m. at The New School for an issue launch focused on the challenges feminists will face under a Trump presidency, and how feminist movements can fight back.

One contributor to the discussion is Premilla Nadasen, Associate Professor of History at Barnard College and co-director of CSSD's working group on Social Justice After the Welfare State.

Others speaking are Dawn Foster, Ann Snitow, and Sarah Leonard. Dawn Foster is a London-based writer on politics, social affairs, and economics, and the author of Lean Out (Repeater, 2016). Ann Snitow, a co-founder of the Network of East-West Women, is a professor of Literature and was the Director of Gender Studies from 2006 to 2012 at The New School. Her most recent book is The Feminism of Uncertainty: A Gender Diary (Duke University Press, 2015). Sarah Leonard is a senior editor at the Nation and co-editor of The Future We Want: Radical Ideas for a New Century (Macmillan, 2016). She is a contributing editor to Dissent and the New Inquiry.

A flyer for the event says "A virulent misogynist is now president of the United States. He has bragged about sexually assaulting women, threatened to repeal abortion rights, and will refuse to protect transgender individuals from discrimination. His proposals to ban immigrants, reject refugees he deems “terrorists,” and cut federal climate spending will have serious consequences for everyone, especially women. And if he follows through on his promise to "bomb the shit" out of countries he deems his enemies, women abroad will suffer too."

The event is co-sponsored by Heilbroner Center for Capitalism Studies, The New School; CSSD; and the Institute for Research on Women, Gender and Sexuality, Columbia University.

See the Facebook event page here.

DISCUSSION: Is Gender Violence Governable? A Panel on International Feminist Regulation

“Over the last few decades Violence Against Women (VAW) and, increasingly, Gender Based Violence (GBV), have come to prominence as sites for activism,” explained Lila Abu-Lughod, Joseph L. Buttenwieser Professor of Social Science and Co-Director of the CSSD project on “Religion and the Global Framing of Gender Violence.” 

In her introductory remarks to “Is Gender Violence Governable? A Panel on International Feminist Regulation,” Abu-Lughod asked “ How can we engage critically with the terms, assumptions, funding streams, policies, and politics that have underwritten this unprecedented outpouring of attention? What is left out when problems both in war and in peace are framed in particular ways that become a kind of common sense? And whose interests are served by such framings?”

The event at Columbia University offered compelling responses to many of Abu-Lughod’s questions. Inaugurating a two-year initiative on Reframing Gendered Violence headed up by the Women Creating Change project at the Center for the Study of Social Difference, the discussion was co-sponsored by the Dean of the Humanities, the Columbia Global Centers, and the Henry Luce Foundation.

Dubravka Žarkov, Professor of Gender, Conflict & Development at the International Institute of Social Studies at The Hague, opened with a paper entitled “Feminist Politics, War Rapes, and Global Governance.” “What is ‘gender,’ and what does it mean in relation to wars and armed conflicts?” Žarkov asked audience members as a lead-in to her critique of Western feminism’s vexed treatment of war crimes and gendered violence.

Tracing the historical elevation of war rape to the position of ultimate violence against women, Žarkov worried that UN resolutions such as 1325 (2000) have enabled the resurgence of colonialist narratives about victims and savages. “Can we really claim that all this injustice is perpetuated against our will?” she challenged her listeners.

Rema Hammami, Professor of Anthropology at Birzeit University, discussed related themes in fieldwork conducted in the West Bank and Gaza Strip. Like Žarkov, Hammami interrogated the effects of UN Resolution 1325. In Palestine, she explained, the resolution encouraged practices of data collection and statistical analysis that disproportionately revealed forms of violence enacted against women, while obscuring the more pervasive violence of settler colonialism.

Janet Halley, Royall Professor of Law at Harvard University opened a Q & A sesssion by highlighting Žarkov’s and Hammami’s shared insistence on bringing feminist critical capacities to bear on the relatively new involvement of feminists in systems of international law and governance. She fielded insightful questions on topics ranging from methods of data collection to the misleading packaging of gender equality initiatives as projects on Violence Against Women.

The conversation continues on Thursday, November 3, with presentations by Professors Dina Siddiqi and Nacira Guénif-Souilamas on “Framing Religion and Gender Violence: Beyond the Muslim Question.”

See photos from the discussion here.

 

Contributed by Liza McIntosh

Frances Negrón-Muntaner on CBS Sunday Morning Discussing "Latinos and the Vote"

Frances Negrón-Muntaner, Professor of English and Comparative Literature, Center for the Study of Ethnicity and Race and director of the CSSD project on Unpayable Debt: Capital, Violence, and the New Global Economy, appeared on a CBS Sunday Morning program about "Latinos and the Vote."

In discussing the current presidential election and the debates over immigration, Negrón-Muntaner said that there is a sense that Latinos have come to the United States mainly as recent immigrants but in fact, “Latinos began their life as part of the United States, when the United States crossed over to Latin America in search of territory."

Watch the whole interview and program here.

China and Africa at a Crossroads: Revisiting the Legacy of Bandung Humanisms

​CSSD's Bandung Humanisms working group presents a panel discussion on "China and Africa at a Crossroads: Revisiting the Legacy of Bandung Humanisms" on October 24, 2016, from 1-5:30 p.m. at the Heyman Center Common Room, Columbia University.

Distinguished scholars Rebecca Karl, Associate Professor of History, NYU ; Jamie Monson, Director, African Studies, Michigan State University; Stephanie Rupp, Asssitant Professor of Anthropology, CUNY-Lehman; Barry Sautman, Professor, Division of Social Sciences, Hong Kong University of Science & Technology; Hairong Yan, Anthropologist, Department of Applied Social Sciences, Hong Kong Polytechnic University; and Duncan Yoon, Assistant Professor of English, University of Alabama will be in conversation with Howard French, Associate Professor of Journalism at Columbia; Stathis Gourgouris, Professor of Comparative Literature, ICLS; Lydia H. Liu, Wun Tsun Tam Professor in the Humanities and Director, Institute for Comparative Literature and Society; Mahmood Mamdani, Herbert Lehman Professor of Government, MESAAS

This workshop will examine the unfolding historical relationship between China and Africa, as part of an ongoing working group devoted to the study of the Legacy of Bandung Humanisms. The Bandung Humanisms working group is interested in the vast, disaggregated landscape of creative elaboration and political, social, and cultural thinking, including current constellations that would be unthinkable without the Bandung legacy.

The Bandung Humanisms working group is interested in the vast, disaggregated landscape of creative elaboration and political, social, and cultural thinking, including current constellations that would be unthinkable without the Bandung legacy. The project endeavors to show that since its inception, the Afro-Asian People’s Solidarity Organization and the Non-Aligned Movement have cited the humanism and self-determination of Bandung.

Rachel Adams Publishes Article about Japanese Massacre and Ambivalence Toward People With Disabilities

Rachel Adams, CSSD Director, Professor of English and American Studies at Columbia University, and director of the CSSD project on Precision Medicine: Ethics, Politics and Culture, recently published an article in the Independent on the universal ambivalence toward people with disabilities.

Citing the largely unacknowledged July stabbing deaths of 19 people in a home for the disabled outside of Tokyo, Adams writes that "The practice of warehousing people with disabilities sends a message that they are less than human."

According to Adams, while people with disabilities gain more rights and are increasingly more visible, they continue to face prejudice, social isolation, and violence. Stigmatization leads to institutionalization, but "In truth, disability is an aspect of ordinary experience that touches all people and all families at some point in the cycle of life," writes Adams.

Read the full article here.